Recent Posts

Joyful surprises to undesirable circumstances.

Talk about an incredible day. A day filled with all my supporters, advocates, loved ones, family, and friends all joined together in the fight against cystic fibrosis. Saturday, my team ‘Miles for Maddie’ walked in the Great Strides Walk-a-thon, which is the CF foundation’s largest fundraising event. With such a tremendous, dedicated, and determined team […]


Regardless of the unwanted news I received last Thursday, May 31st, my day began with love, support, and greatness while ending with family, happiness, and reassurance. Which is the most important thing to me. I didn’t quite receive the news I wanted to at my post hospital follow up appointment that day. I began with […]

“As I leaned against the wall I covered my face suddenly as emotion poured over me.”

It’s sometimes hard to except things have changed. I know it, I can say it, but its hard for me to change expectations for myself given the change. My lungs haven’t been the same for a couple of years now. They have changed and worsened quicker in this time than I’d like to accept. I […]